About the Project
To provide easy to understand and helpful information for parents, family, medical professionals, and friends of people with Cobalamin-C.
The information within strives to be scientifically-precise, without sacrificing ease of reading or the sharing of anecdotal and informal wisdom.
Who are we?
So far it is just two of us, Blake and Katie. Our 1 year old son was born with Cobalamin-C and this site was born out of both our frustration with information being spread all over and our desire to help other parents deal most effectively with this condition.
Since there are only 200-300 known patients and widespread detection is rather recent, there is a large knowledge problem. Through groups like the OAA parents have been able to share and learn from each other quite effectively. Our aim isn’t to supplant organizations like that but instead support them and provide a place dedicated entirely to providing a comprehensive knowledgebase.
Interested in helping add and edit content? We’d love to have your help, just contact us.